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Just Diagnosed

Meezermum

Just about to start this journey

I was diagnosed at the end of May this year . Following six months of not keeping food down and loosing five stone , I was also very anemic .I had an endoscopy which showed nothing and 2 weeks later a CT scan when I was told I have bowel cancer .I was then waiting for surgery but this then became emergency surgery six weeks ago .and had right hemi colostomy . I was told the tumour was large and stage 3 and it had gone into my lymph nodes and thank goodness no where else . I am seeing my oncologist this afternoon and hope to start a plan . I have been reading your amazing stories in this forum and have finally plucked up courage to add mine . As this now makes it real and I am stressed and worried about what will happen to me . I am very lucky to have a wonderful husband and I know he is worried too .

bexly33

Hi @jojo71. I have just finished cycle 4 of Oxi at a reduced dose of 25%. Had severe side effects with the other 3. Not too bad this time and was very relieved. Feel
C..p today tho. I've asked to stop it in view of the results of the Scot trial. Chemo nurse said it should not be a problem, but will discuss with Oncologist in 2 weeks. I'm
TN3/N1/M0. I'm down for 8. I do have this niggle tho re stopping it early. Good luck 😉 :x::x::x:

kidsversuscopy

Hi @bexly33 - I'm the same stage as you (2 lymph nodes though but no blood vessels) and at the moment I'm only down for 4 cycles of Capox... Started my first yesterday :x::x::x:

Clairelou

Hi @jojo71 thanks for your advice, side effect of oxi are slowly easing, still unable to drink anything above room temp though. I'm really struggling to cope with it all to be honest, the sickness is horrendous from the cap tablets. I can handle the fatigue, but the sickness is just too much, Ive got some different anti-sickness tablets from my GP yesterday so I'm hoping these help. At the moment I'm borking at the though of taking my 8 am tablets 😕 Feeling low and sick of moaning to my poor husband :x::x::x:

Clairelou

@Meezermum &. @kidsversuscopy how are you both doing? :x::x::x:

kidsversuscopy

@Clairelou ugh sickness has hit at day 3. Feeling rubbish! Just taken some anti-sickness pills and keeping fingers crossed. Will need to ask for some stronger ones.... Hope your new ones work better for you, what have they prescribed? :x::x:

Clairelou

@kidsversuscopy bless you - sending my love 😍 ondansetron they're called. Just taken one in the hope they work so I can get my cap tablets down. I'm a week in now and hoping things start to settle soon. I mean do you even really get a week off and feeling normal on your week off tablets? I'm so glad I've got you lot to moan too who know exactly how I feel :x::x::x:

kidsversuscopy

@Clairelou that's the one I'm on for three days post the Oxy and it really works. The only problem is it stops today so I'll be requesting much more! Just taken mine and chowing down some raw ginger and gearing up for the cap tablets. God, this is gruelling, not helped by my four year old insisting on jumping up and down on my stomach! Much love to you too. Let me know how you get on with the ondansetron. :x::x:

LankyYankee

@Meezermum just seeing how you are :x::x:

1234annie

Suppried they didn't give you the ondansetron to start with. I get them for the first night only, I think they are very expensive!! Sorry to hear your feeling shitty. I have my 4th round yesterday, hands had pins n needles straight away. I felt it in my feet but only for a few seconds and my left hand went stiff and the fingers curled round, again only for a minuite but I did feel really crappy straight after the chemo yesterday. Mine was T4bn1mo, I asked about 6 rather than 12 and she said no.....better to have more than less, mine had aggressive markers so suppose that's why, although my markers were all normal b4 trestment which she said easy very good. I cling on to the glimmers of hope, I spoke to a lady the other day with exactly the same bowel tumor who had 6 months folfox and she was 12 years down the line with no recurrence.
On a different note does anyone find they sneeze more on chemo? Annie :x: :x: :x:

Clairelou

Hi @1234annie, yes they gave me 2 days worth of ondansetron and once they were finished I had a mild sickness called met.... something, which didn't work. It's a tunnel with no light at the end of it for me at the moment. Well done cycle 4 done!! Hope it's kind to you :x::x::x:

deviem

hi everyone..Im new here..I have not been officially told that i have bowel cancer..just that a CT scan revealed a "concern"..have had a colonoscopy plus a ct scan..Im due for a further ct scan (abdomen and pelvis) on monday,a sigmoidoscopy on Tues and an MRI scan (pelvis and rectum) on thurs..bewildered and scared..:x:

Meezermum

@LankyYankee I'm doing ok and thank you for asking . I've started a new thread on my treatment . Lots of love :x::x::x:

Meezermum

@Clairelou hi , I'm sorry you're not doing too well . Love and hugs :x::x::x::x:

Delboy

Hi @Meezermum - glad you're doing ok 👌👌👌

Hi @Clairelou - sorry you're struggling - it's a real grind I know and you sound the same as me for my last 2 cycles. The nausea and just feeling pants wears you down.

See if they'll give you cyclazine for anti-sickness- worked for me - talk to your cr nurse and she should be able to arrange some for you.

💪💪💪

Clairelou

Thank you @Delboy - I haven't been able to take my evening tablets because I just can't bare swallowing anything and just makes me Bork. Sorry for being dozy but what is CR nurse? :x::x:

Delboy

Colo-rectal nurse - part of the 'multi-disciplinary team'.

Clairelou

Ah right... of course! yes I have one of those and she's lovely. I will ring and speak to her Monday -thanks for the advice :x: :x:

Meezermum

@Clairelou .I would suggest you call her today . Get this sorted ASAP !!

Clairelou

My CR nurse only works Monday to Friday ... I have called an out of hours number and waiting for a call back - feel even worse today 😕:x:

1234annie

Hope your ok Clairelou, sorry you feel so shitty. I've felt ok this round so far and think I felt crap because I forgot the steroids last time. :x: