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Stage 4 bowel cancer

Mayogirl

Stage 4 with 8 mets on lungs - Help

Hello,
My sister (age 44) was diagnosed two years ago with Stage 4 colonrectal cancer with lung mets. Since then has been on Folfox and Folfiri (with Avastin). The cancer on rectum cleared within months of chemo however the mets have only reduced in size. The mets are 10mm or less in size. The most recent scan shows that the mets are beginning to grow and her consultant has said that she should consider clinic trails. She is due to start Regorafenib in the coming days. Any guidance on where to start looking for clinical trials would be great. Also, if anyone has tried other treatments for mets on lungs please let me know. Thanks

mem

Morning @Mayogirl and I'm so sorry to hear about your sister's diagnosis. It's postive to hear the chemo had a great effect on your sister's primary (rectum) just sorry to hear about the lung progression.
Just wondering, you state consultant. Is this a lung specialist you're referring too? If not, has there been any mention of your sister being referred to a specialist in that area? I'm 43 and I also have lung mets. I have had surgical intervention for 6 up to now (two lung resections and one session of radiofrequency ablation) but I do know size, positioning, amount, or if there is active cancer elsewhere can dictate whether it's the best way forward or not. But again, only a specialist in that area can advise.
Sending you both lots of love and support. :x::x:

Mayogirl

Thanks Mem for getting back to me. She is working with her Colorectal oncologist at the moment. The mets are scattered on both lungs. Over the last 12 month she has seen a Cardiothoracic consultant who says because of the number and position of the mets he can not operate, we also saw a Radiation Oncologist about stereotactic however he will not do anything when there is more than 5 mets. Indeed we got them both talking together and they concluded that drugs were the best option for her. This was 12 months ago so worth revisiting now that the chemo is not maintaining them.

mem

Ah ok @Mayogirl it does sound like she has great team behind her already. And yes I agree, it may just be worth asking those questions again. Do you know if your sisters recent scan results have been included in a thoracic/lung MDT (multi disciplinary team) or are going to be? :x::x:

Mayogirl

Thanks, I think it will be with the MDT tomorrow. We are based in Ireland and I understand her Consultant only has one other person he is working with who has scattered mets on the lungs so we are spreading the net wider to see if there is more information or routes that we should be looking at in the UK and US. We are also looking to get a second opinion so any suggestions of experts in the area would be appreciated. Thanks again

mem

Absoulety the right thing to do @Mayogirl. Leave no stone unturned! For my lungs, my consultant is Mr R Milton, St James, Leeds, who I have always found to be great. He works both privately and NHS.
I will have everything crossed for you both going forward and good luck with your searching too :x::x:

StaceyH

Hi there
My husband is in the same position, almost exactly. I have done extensive research about treating the lung mets, the best thing I have found is at the Royal Brompton in London, the 1318nm lung laser, it's specifically for people with multiple lung mets (over 5) that are small. Google it and have a read, the stats are very impressive. the only thing is that it's private and not sure how much each treatment costs

CD1966

That sounds very interesting @StaceyH - my brother has multiple but very small lung mets and has gone back onto his original chemo to deal with these. I am going to look this up.

Mayogirl

Thanks million @StaceyH, I will look into this.