Hi everyone, I'm new to this forum. Apologies in advance for rambling, but I'm looking for some hope and postive stories, and if possible, advice on what we should be asking the oncologist for. My husband was diagnosed in August 2016 with stage iv bowel cancer with multiple liver mets, peritoneum, and a tiny appearance in a lymph node round his back. Due to the far lymph node spread, we've been told he's inoperable.
After having a stent fitted, he started fortnightly doses of cetuximab with irinotecan. His 3 month scan brought positive news, with no evidence of disease in the far node, and significant shrinkage in the tumours in his liver. We were told that while surgery still wasn't an option (high chance of reoccurrence due to previous evidence in the far node), he could step down to a maintenance programme after the next scan. However the next scan didn't bring the news we'd been hoping to hear. While the mets in his liver had continued to shrink and there was still no evidence in the far node, the tumour in his bowel had begun to change a little and there was a "tiny" spread in his abdomen. The oncologist felt that his body has already got used to the cetuximab, so felt a change in drug protocol was required. We were crushed as we'd heard so much about how cetuximab has prolonged people's lives. He's now on oxaliplatin, and due to have his 5th treatment on Thursday. He's recently been having some discomfort in his tummy, which he feels us due to constipation, but my mind is running away with me. I'm trying so hard to be positive and strong, but this weekend find myself struggling. We had 3 children placed with us for adoption only 6 months before his diagnosis, which is stressful enough in iteself! My husband was 38 at the time of his diagnosis (now 39).