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Stage 4 bowel cancer

Teatime

Blood clots in lung

After months of not feeling well an 10 days in hospital with high temperature, my husband who has advanced bowel cancer , was finally given a ct scan yesterday , he has a clot in each lung . Anyone else experienced this . I'm not pleased they took so long to diagnose the clots as he had all the usual symtoms. I send you all my best wishes :x:

Kareno62

Hi @Teatime. I was hospitalised after my initial surgery with a build up of fluid behind the Bowel rejoin. I was only home for 3 days when I went to the doctors as I was so short of breath and it turned out I had a large clot in each lung. I was in hospital for 12 days on a newish blood thinning tablet called apixaban which involves less monitoring than warfarin.
I am still on the tablets now and started my chemo 8 weeks ago. As I understand it they cannot get rid of the clots but these tablets help prevent any new ones occurring. The body either breaks down the original ones itself or learns to 'work round' them. Actually went back to see the consultant for a follow up a couple of weeks ago but he is a cardiologist and decided I would be better seeing a lung specialist (!?) which will now be in the middle of July
Hope your hubby starts to feel better soon
Karen :x:

Swan

Hi @Teatime sorry to hear about your husband. I hope they get it sorted for him quickly. If you don't mind me asking, what were the symptoms? My husband who also has stage 4 has been seeing his GP for a few weeks now with a hacking cough and other symptoms which no one is really getting to the bottom of . Take care and I hope you get some helpful replies on the forum, I'm sure you will :x::x:

Ev

Hi @Teatime , I hope your husband is getting the treatment he needs now and is starting to feel better. When my husband had his first lot of chemotherapy, he went to the GP with severe pain in his ribs and a temperature. He was told it was probably pleurisy and was told to take ibuprofen. Unknown to us at the time, both having cancer and having chemo increase your chances of clots. Nothing improved so he phoned the chemo helpline and was told to go straight to hospital. He was given an Xray or CT (can't remember which it was now as it's a couple of years ago and many scans down the line!) and they found that he actually had two clots - one on each lung! He was prescribed blood thinning injections for a good few months to get rid of them. It's really dented any faith he had in the GP as you would have thought that they should have had an inkling that clots could be a cause due to the increased risks when on chemo and having just had surgery for bowel cancer a few months beforehand.

Teatime
Quote from @Kareno62: thank you for your reply did you feel better soon after treatment started . My husband stil feels very sick ,tired an no appetite. Wishing you all the best x
Hi @Teatime. I was hospitalised after my initial surgery with a build up of fluid behind the Bowel rejoin. I was only home for 3 days when I went to the doctors as I was so short of breath and it turned out I had a large clot in each lung. I was in hospital for 12 days on a newish blood thinning tablet called apixaban which involves less monitoring than warfarin.
I am still on the tablets now and started my chemo 8 weeks ago. As I understand it they cannot get rid of the clots but these tablets help prevent any new ones occurring. The body either breaks down the original ones itself or learns to 'work round' them. Actually went back to see the consultant for a follow up a couple of weeks ago but he is a cardiologist and decided I would be better seeing a lung specialist (!?) which will now be in the middle of July
Hope your hubby starts to feel better soon
Karen
Quote from @Kareno62:
Hi @Teatime. I was hospitalised after my initial surgery with a build up of fluid behind the Bowel rejoin. I was only home for 3 days when I went to the doctors as I was so short of breath and it turned out I had a large clot in each lung. I was in hospital for 12 days on a newish blood thinning tablet called apixaban which involves less monitoring than warfarin.
I am still on the tablets now and started my chemo 8 weeks ago. As I understand it they cannot get rid of the clots but these tablets help prevent any new ones occurring. The body either breaks down the original ones itself or learns to 'work round' them. Actually went back to see the consultant for a follow up a couple of weeks ago but he is a cardiologist and decided I would be better seeing a lung specialist (!?) which will now be in the middle of July
Hope your hubby starts to feel better soon
Karen
Quote from @Kareno62:
Hi @Teatime. I was hospitalised after my initial surgery with a build up of fluid behind the Bowel rejoin. I was only home for 3 days when I went to the doctors as I was so short of breath and it turned out I had a large clot in each lung. I was in hospital for 12 days on a newish blood thinning tablet called apixaban which involves less monitoring than warfarin.
I am still on the tablets now and started my chemo 8 weeks ago. As I understand it they cannot get rid of the clots but these tablets help prevent any new ones occurring. The body either breaks down the original ones itself or learns to 'work round' them. Actually went back to see the consultant for a follow up a couple of weeks ago but he is a cardiologist and decided I would be better seeing a lung specialist (!?) which will now be in the middle of July
Hope your hubby starts to feel better soon
Karen
Quote from @Ev:
Hi @Teatime , I hope your husband is getting the treatment he needs now and is starting to feel better. When my husband had his first lot of chemotherapy, he went to the GP with severe pain in his ribs and a temperature. He was told it was probably pleurisy and was told to take ibuprofen. Unknown to us at the time, both having cancer and having chemo increase your chances of clots. Nothing improved so he phoned the chemo helpline and was told to go straight to hospital. He was given an Xray or CT (can't remember which it was now as it's a couple of years ago and many scans down the line!) and they found that he actually had two clots - one on each lung! He was prescribed blood thinning injections for a good few months to get rid of them. It's really dented any faith he had in the GP as you would have thought that they should have had an inkling that clots could be a cause due to the increased risks when on chemo and having just had surgery for bowel cancer a few months beforehand.

Kareno62

Hi @Teatime. I feel ok now although constantly worry that there may be another one if I get the slightest twinge. My main sympton was the breathlessness to the point where I was struggling to hold a conversation. I felt tired and no appetite but I think that was just the lack of sleep being in hospital and feeling so fed up with it all - it's long days in hospital and I found sleeping a struggle. Is your husband still in hospital?

angepange

Hi @Kareno62 , there are a few forumites who have had blood clots. Hopefully they will be along to give u advice. I have had one, but in my pick line vein, not lung. Injected thinners for 6 months and it resolved. Chemo seems to thicken the blood apparently. Anyway, hope you feel better soon. Lots of love. Angie.:x::x::x::x:

HappyAtom

Hi @Kareno62 I had venous thrombosis (DVT which ends up with pulmonary embolism).

They found multiple small blood clots I both my lower lobes, and one in the left upper lobe which was the one producing the symptoms, along with a sore calf.

I was also diagnosed with pneumonia at the same time - funny thing was I didn't feel really unwell - I didn't realised I had a temperature of 39.5. I only had 2 days in hospital, discharged with mega antibiotics and self administered Clexane injections.

I can't have tablets until after I've finished on Capecitabine due to the tablets reducing the efficacy of the Cape whereas Clexane doesn't . So I've been on injections now for nearly three months. The tablets or injections help to stop new clots forming, the body has to break down the existing ones by itself. In extreme cases they can use clot busting drugs, but these can be quite risky.

I'm still not sure whether my clots came from surgery, the chemo, or just having cancer - I had no history of anything like this before.

My symptoms are almost fully resolved, I find myself catching a deep breath sometimes, and a big hill this week left me a bit breathless - but that could just be not getting back to full fitness after surgery in January.

Beck R

They found clots in my lungs when I had the first ct scan after three months chemo. I'm on bloodthinning injections for either 3 or 6 months but still breathless when doing much physically and also fairly often during conversation:( Have another ct scan next week - fingers crossed they have had time to break down ...

Caraeliz24

@Teatime I had a blood clot in my heart but with no apparent symptoms, found on a CT scan for something else. They thought this was probably due to my port. I've been on blood thinners ( tinzaparin) for a year now, as I continue to have chemotherapy they needed to put a PICC line in, as they deem me to be high risk I assume I will be on thinners until the line comes out.
I hope your husband is doing ok.

Teatime

Thank you all so much for your replies. Husband out hospital but still very tired an no appetite. Saw oncologist today , he has two large clots and multiple small ones in his lungs . On daily injections . Having break from chemo as he is so unwell at the moment ... Will he recover from this ....I'm so worried about him . The good news was ...the tumours in his bowel, liver an lung have got smaller , but at what price ,he has no quality of life at the moment.......anyone been through similar.......

Teatime

My husbands symptions were terrible tiredness an slight breathlessness . He also had no appetite. None of his symtoms have improved yet .....best wishes to you all :x:

Swan

I'm sorry you are both having such a tough time @Teatime. It is good that the tumours have shrunk. You must both be exhausted, I hope the clots start clearing very soon so he can get some relief and start getting some quality of life back. My husband had been struggling with his appetite and we were advised to make up some protein drinks with whole milk, fruit, whey or pea protein powder, that type of thing and that he should try and have a few sips every hour or so. Also small meals often rather than a few large ones. Hope things improve very soon love Sawn :x::x: