I have just spoken to the lovely coordinator for the SCOTTY whole genome study. They are looking to recruit young bowel cancer patients (under 40) with no family history and no identifiable generic fault (i.e. Lynch/FAP). I think this study is incredibly important in helping uncover why young people are getting bowel cancer, to help future generations, and they also give you any relevant genetic information they may uncover, if you wish to know.
Here's their aim:
The SCOTTY Study is a major initiative to conduct “next generation sequencing” of the whole genome of young colon cancer patients and both parents where there is no evidence of cancer running in the family. This will, in the long term, help us to develop new treatments and predict who will be susceptible to cancer and so be able to prevent disease progression.
You can call for a chat if you interested and want to know more 0131 651 8602 or email firstname.lastname@example.org.Uk