A couple of weeks ago @Charlotte Senior Nurse Advisor , @Chris82 and I attended the first meeting of the IMPACT Initiative. This initiative is aiming to improve care of people with advanced bowel cancer. It was a great day with very interesting discussions. The audience was mainly oncologists and surgeons with some representation of charities and patients. The charity is working on being able to share the presentation I gave with you.
IMPACT stands for “Improving Management for Patients with Advanced Colorectal Tumours”.
The second meeting is taking place next month and they would like to encourage more patient and carer involvement – are you interested? They would like to get representation from across the country and will cover standard class train fare.
If you are interested then please email Abigail Vallance on firstname.lastname@example.org
I’ve copied some information below.
I'll be there and I hope to see some of you there so our voices can be heard in helping ensure better studies designed for us.
This has been reviewed and approved by the Beating Bowel Cancer office.
INFORMATION ON THE IMPACT PATIENT AND PUBLIC INVOLVEMENT MEETING:
Date: 26th June 2017 11am to 4pm
Venue: Royal College of Surgeons, London
Patient and Public Involvement (PPI) is fundamentally important when designing and running research studies as patients bring valuable contributions by providing judgements based on their own experience and understanding of their condition. They may also have different thoughts and ideas about what is important in terms of measuring outcomes. Often, patients will also be able to predict whether a research study is likely to succeed by assessing whether the proposed research will seem acceptable to other patients. Any major research funder will now only consider awarding a grant to researchers who have involved patients in study design and planning.
If you are a patient that has had colorectal cancer that is advanced, widespread or has come back after previous treatment, or you are a relative or a carer to someone in this position, or if you work with a patient support group or charity, you can help guide the research team by advising us how best to carry out research for the benefit of future patients. It does not matter what type of treatment you or the person you care for has received. You will be able to draw on your own experiences to help the research team.