As I feared the Lonsurf hasn’t worked and all tumours have continued to grow. The Scan report only addressed the largest of the tumours this time and included the following… “the peritoneal deposits have increased in size (for example 6.7x3.6cm increased to 7.4x4.5cm; 6.5x5.5cm increased to 7.0x5.4cm) suggesting disease progression. The lesion in the liver porta area is more bulky, difficult to measure, clearly involving the anterior wall of the inferior vena cava.”
So, all treatment stopped; the inferior vena cava involvement is new and somewhat concerning, as this is the biggest and also the thinnest walled vein in the body, taking the deoxygenated blood back to the heart from the lower limbs.
My Oncologist suggested referral to The Royal Marsden for Phase 1 trials and I should hear something next week. I’m really in two minds about this. Half of me wants to grab at any option whilst the other says make the most of the remaining time whilst I’m currently still reasonably fit, the tumours aren’t causing any discomfort yet and it’s only the side effects of the numerous chemo’s that have made life difficult. I think I will see the Doctor conducting the trial and see what is involved before making a decision. The Royal Marsden is also some distance away, Gail doesn’t drive and the trials are usually all consuming time wise.
Whilst there will be no more Oncology appointments at Maidstone, both my Oncologist and Macmillan nurse have assured me that they are there for me if needed at any time. Other than that it’s down to my Community Nurse at the Heart of Kent Hospice, who is always at the end of the phone for help and advice and has already been to see me a couple of times over the past few months. Bob