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Beating Bowel Cancer Community

General Discussion

1234annie
Quote from @jeangenie:
I had been low carb ever since I lost weight and found it cured my arthritis. I started a ketogenic diet as soon as I knew I had cancer and felt fairly well right throughy my treatment. Obviously I'll never know if it helped but it was something I could do and I felt I was doing myself good. I still avoid sugar and starches and eat food in as natural a state as possible. I had my latest follow up last Wednesday and am still clear.

Great news!! :x: :x:

Sasa

Hi @1234annie , just while I think about it, there is a lot of research about acne and refined sugar/refined carbs.... if you’re interested in diet why not try your daughter on a change of diet? She may just thank you!

Sarah :x:

1234annie

I think you are right @Sasa, she loves toast and chocolate spread for breakfast so I think we will have to swap a few things out. Generally she's good and prefers salad and veg and eats a healthy dinner but there is always room for improvement. I was just looking at the keto diet for me but I just don't think I could do it. I don't eat any refined sugar apart from a square of dark chocolate and only really get glucose from fruit or fruit smoothie I make daily, I dont eat bread, sausage, bacon or processes meats or meals. Cutting out fruit seems a bit mad considering all the health benifits.
Most meals are salad or veg with fish or chicken. The odd bit of organic cheese or milk, I've changed my diet lots since reading that book and researching the bicrobione. :x: :x::x:

jamtart

Hubby was advised not to eat 'live' yoghurt whilst on chemotherapy as it moves the chemo through the system quicker

WendySue

@jeangenie That is brilliant news on your follow-up!

@jamtart I had not heard this advice about live yoghurt which I have eaten during chemo to help with Candida. I was advised to leave out any supplements and to avoid antioxidants which was different to what some of my books on integrative cancer care were saying!
:x::x:

Elmac

Hi @1234annie @Sasa @WendySue @KarenE @jeangenie @jamtart - when I was recovering from my surgery 3 months ago, my son brought me the book "GUT -the inside story of our body’s most under-rated organ"
by Giulia Enders which is fascinating, well written an easy read and quite entertaining, for as Giulia says, our gut goes from our mouth to our anus! She goes into all the multiflora and microbes in our gut. Available on Amazon
Elaine

jeangenie

That sounds very interesting. I've found it in our library system and ordered it. Not only is the gut such an important part of us, my chemotherapy nurse said it is composed of rapidly dividing cells which are the very ones targetted by chemo so it makes sense to find out as much as we can about it and support it as much as possible. I know someone who used to have a lot of polyps who has embraced fermented food as a source of probiotics for the gut. She makes her own sauerkraut and kefir and doesn't have a problem with polyps now.

WendySue

Thank you @Elmac for the book suggestion which I am also going to order. That is fascinating @jeangenie that the diet resolved the polyps. I used to go for acupuncture during chemo and was told that in traditional Chinese medicine the gut is viewed as the seat of the immune system and I was at risk because of having lost so much of my bowel. So I want to do as much as I can. Also my sons are in friendship groups where fast food is part of the culture and I am facing an uphill battle with them to think about what they eat.
:x::x:

KarenE

Thanks @Elma

KarenE

Thanks @Elmac for book suggestion. @jamtart my hubby was told not to eat yogurt or any probiotic whilst on chem as well. They said the body would not be able to tell the difference between good and and bacteria. It didn’t really make sense to me but we did what we were told. Xx ps sorry my thumb hit send to early :x::x:

jeangenie

Hi, @WendySue @Elmac @KarenE @jamtart @1234annie @Sasa
What an interesting discussion this is! Thank you for positive messages.
I have found some websites very helpful with the low carb/ketogenic diet. www.dietdoctor.com, www.ketongeniconcologist.com, www.anticancerbook.com (I have the book as well but all the info is on the website) and www.ketogenic-diet-resource.com (I have this lady's book as well). There is a lot of speculation about how diet can support us through treatment.
WendySue - It is so difficult with sons and daughters! You can make sure that the food they eat at home is the best you can give them and that they are aware of your concern about diet but then they have to make their own choices. My son (41) follows a low carb diet because he cleared up his acne with it, on my suggestion. My daughter eats well but plenty of processed food.

WendySue

Thank you @jeangenie for all these interesting websites. I am really excited about reading up. Yes, I agree I have to just do what I can with my sons and then they make their own choices.
:x::x:

1234annie

"How not to die" also looks like a good read. Has anyone read that yet? I have bloods coming up soon, really hope this is all having a good effect on my body 🤞

KarenE

My hubby has just had blood results, his CEA was less than 2. So hopefully you will have a great result too @1234annie. We have to do all we can and hope for positive results. :x::x:

1234annie

That's brilliant @KarenE My cea was 1.5 after surgery and before chemo. Went up to 3.8 on chemo but onc said my liver enzymes where up so it was a reaction to chemo. In Feb it dropped to 0.8 but went up to 1.7 in May and I sh*t myself it was coming back. End of May scan clear but what will it be now???? I started excersising in April and did a 12k session a day before the bloods. I hope and pray it was the inflamation in my joints that pushed it up..... I suppose time will tell. Just finished my kefir shake.... I'm not a fan of milky drinks but got it down. 😁

KarenE

@1234annie that’s a very familiar scene in my kitchen too. Our hospital doesn’t tell you levels of CEA under 2 for some reason. They only say it’s less than 2, so I don’t know if there are any minor changes. Good luck again with your results. :x::x:

jeangenie

A friend told me to have my follow up appointment bloods taken at the local surgery a week before I needed them and get them printed up. My CEA was 2.8 but the specialist nurse only told me it was 'satisfactory' and was quite taken aback when I produced a print out. I also asked the doctor to do a full blood test as our hospital doesn't ask for it.

1234annie

My cancer nurse doesn't like CEA and says it gives people terrible anxiety. She said if they could diagnose from cancer from cea they wouldn't bother with scans and it's not a good screening tool. :x: :x: :x:

jeangenie

That's interesting @1234annie . The leaflet on this site says it is only a good indicator if it was raised before any cancer was removed. I never had a CEA test while I still had cancer in me but that is what the specialist nurses order. Still, I will have a scan as well next time.

1234annie
Quote from @jeangenie:
That's interesting @1234annie . The leaflet on this site says it is only a good indicator if it was raised before any cancer was removed. I never had a CEA test while I still had cancer in me but that is what the specialist nurses order. Still, I will have a scan as well next time.

I know mine was raised but I have no idea what it was. My nurse claims it can raise if your fighting infection or if you bang your leg!! I'm not sure if she was just trying to calm me down at the time.