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Beating Bowel Cancer Community

Life beyond bowel cancer

lorraine grant

Question over vitamin supplements, herbal remedies, teas and the like

Having been on this forum for about 6 weeks now, I’m confused by the number of non-prescribed things that folks are taking. While I had asked re cannabis a wee while ago I accept that this might not be a good idea, but then again who would know. So my question really......is there an option to have a section on the forum listing all the different substances, their uses, doses, effects and impact on chemo, so that everyone has access to the info without having to wade through every post?
For example, I’ve read about turmeric, pomegranate, some green tea but I’ve forgotten the name.
I think I’m keen to try everything possible to enhance my chances of surviving stage 4, but terrified that whatever I try might have a negative impact on the xelox chemo regime I’m on (currently).
Thanks for listening
:x::x:

Tiffany

Hi @lorraine grant.

It is a very interesting and confusing topic. The issue is that as scientists most oncologists don't believe in herbal remedies or alternative therapies. Ours most certainly did not and told us it was all a big load of rubbish. I didn't listen though and decided to go for a much healthier lifestyle in general. You can click on my name to see some of what I did.

The other problem is that everyone is different and what works for one doesn't always work for the other. Also drug combinations can affect the way supplements and so on work and possibly vice versa.

The only thing I can recommend is to read up on everything with books such as The Royal Marsden Cookbook or Crazy Sexy Diet by Kris Carr. I found a great local health food shop and got some great advice in there. A bit of trial and error along the way!

The advice from Beating Bowel Cancer would be to ensure you check over everything you want to do with your doctor or oncologist before you take any supplements or make any diet changes.

Wishing you all the best. Tiffany :x:

ch7091

Hi @lorraine grant , I am a member of ColonTown on facebook which is an american support group. They seem to get very different advice to us about taking supplements and Ive found it definitely helpful.

Might be worth a look if you are on facebook. They seem to be very on the ball about new research as well 😁.

Jodie :x:

tigercub
Quote from @Tiffany:
Hi @lorraine grant.

It is a very interesting and confusing topic. The issue is that as scientists most oncologists don't believe in herbal remedies or alternative therapies. Ours most certainly did not and told us it was all a big load of rubbish. I didn't listen though and decided to go for a much healthier lifestyle in general. You can click on my name to see some of what I did.

The other problem is that everyone is different and what works for one doesn't always work for the other. Also drug combinations can affect the way supplements and so on work and possibly vice versa.

The only thing I can recommend is to read up on everything with books such as The Royal Marsden Cookbook or Crazy Sexy Diet by Kris Carr. I found a great local health food shop and got some great advice in there. A bit of trial and error along the way!

The advice from Beating Bowel Cancer would be to ensure you check over everything you want to do with your doctor or oncologist before you take any supplements or diet changes.

Wishing you all the best. Tiffany

Hi Tiffany
I just read your profile I M stage 4 bowel and secondary in liver probably never operable but things may change.you said you had holidays abroad was your hubby still on treatment my oncologist and bowel surgeon both said they will work round me and give me chemo break for holiday.i enquire with few insurance companies just as query and none will insure me while on treatment did you come up against this .I'm not actually wanting go anywhere yet till things hopefully improve I just curious

Tiffany

Hi @tigercub. We have had private travel insurance for our whole family for quite a few years. When my hubby rang them and told them about his cancer they didn't have a problem with it but as said this may have been because we've had a policy with them for quite a long time. If you type travel into the magnifying glass in the topic Life with Bowel Cancer you can see recent threads of conversation on this. It's been discussed quite a few times. Sorry can't be more helpful :x:

tigercub
Quote from @Tiffany:
Hi @tigercub. We have had private travel insurance for our whole family for quite a few years. When my hubby rang them and told them about his cancer they didn't have a problem with it but as said this may have been because we've had a policy with them for quite a long time. If you type travel into the magnifying glass in the topic Life with Bowel Cancer you can see recent threads of conversation on this. It's been discussed quite a few times. Sorry can't be more helpful

Hi Tiffany
Oh I see well I first tried my travel insurance been with them 20 years it's with house insurance and mortgage so not specialand they won't help but will consider once been off treatment long time .like I say I was only just curious I think I have be lot better before hubby will relax with me going abroad he's found it all bit much sometimes.thanks again :x:

GD62

Hi @lorraine grant that sounds like a Scots name my sister is a Lorraine. But Macmillan have a great leaflet and booklets of recipes, diet and other advice that you can get for free, plus other advice on booklets on this site. My advice speak to your oncologist or specialist nurse. Johnnie Diamond who was Nigella Lawson wrote a book debunking certain alternative therapies, he died of cancer sadly. No relation to me although my surname is Diamond. Hugs 🤗 good luck 👍 and positive healing :x:

Baxter2

Sorry for hijacking your thread @lorraine grant but just wanted to highlight to @tigercub that I've had insurance from Insurancewith for a cruise and now recently MIA for a holiday to Majorca in 3 weeks time. Both times, I've been covered for all aspects of cancer and cancer related issues. I'm on active chemo every two weeks, history of multiple surgeries (as it's now referred to!), history of blood clots and on continuing injections for they and stage 4. The cruise cost about £78 and the Majorca trip £145 for a week. I did find some companies just wouldn't entertain it however. Maybe try these two companies?

K💚💛💜❤️💙

tigercub
Quote from @Baxter2:
Sorry for hijacking your thread @lorraine grant but just wanted to highlight to @tigercub that I've had insurance from Insurancewith for a cruise and now recently MIA for a holiday to Majorca in 3 weeks time. Both times, I've been covered for all aspects of cancer and cancer related issues. I'm on active chemo every two weeks, history of multiple surgeries (as it's now referred to!), history of blood clots and on continuing injections for they and stage 4. The cruise cost about £78 and the Majorca trip £145 for a week. I did find some companies just wouldn't entertain it however. Maybe try these two companies?

K💚💛💜❤️💙

Hi Baxter2 thanks for advice .when you say your on chemo every 2 weeks is that infusion and tablets.im having a UK hol then getting my head around a letter to CEO of travel company asking for them to extend our date of deposit held they say they only hold it year or let me use it on UK holidays which they do or failure of that donate it to cancer research.should have dealt with it at time different but had just been told had bowel and liver cancer so brain didn't act proper.so am going appeal to his compassionate side can he bend rules for us you never know

Catlover

Hi just another one to look at-NFOP which offers worldwide annual cover with no medical screening for £275 a couple.

Baxter2

Hi @tigercub

Yes, I have infusions lasting about 6 and a half hours and then the little chemo pump attached for 46 hours afterwards. No chemo tablets. I have a small met in liver of which they are aware of too. I just told them everything and that was my price which I was happy with. It's very reassuring to have. I took it out prior to the holiday too in the unlikely event of having to cancel for whatever reason.

Good luck!

K💚💛💜❤️💙

tigercub
Quote from @Catlover:
Hi just another one to look at-NFOP which offers worldwide annual cover with no medical screening for £275 a couple.

Ok thanks

tigercub
Quote from @Baxter2:
Hi @tigercub

Yes, I have infusions lasting about 6 and a half hours and then the little chemo pump attached for 46 hours afterwards. No chemo tablets. I have a small met in liver of which they are aware of too. I just told them everything and that was my price which I was happy with. It's very reassuring to have. I took it out prior to the holiday too in the unlikely event of having to cancel for whatever reason.

Good luck!

K💚💛💜❤️💙

Ok thanks for advice.sorry for questions is that chemo long term .I have been told probably chemo long term maintenance as not curative probably never operable unless piggy flys and I had assumed it would be just tablets long term

Baxter2

Hi @tigercub

My chemo is indefinitely as stage 4 as are my daily Fragmin injections. I'm still on first line treatment of Folfiri and Cetuximab and it's still working thankfully. Just had cycle number 44 i think it is. Long may that continue!

K💚💛💜❤️💙

tigercub
Quote from @Baxter2:
Hi @tigercub

My chemo is indefinitely as stage 4 as are my daily Fragmin injections. I'm still on first line treatment of Folfiri and Cetuximab and it's still working thankfully. Just had cycle number 44 i think it is. Long may that continue!

K💚💛💜❤️💙

Hi Baxter2 yes well done you 44 that's a lot of treatment I guess you get used to it .yes long may it continue

Terrish

Hi @lorraine grant - I take the Pomi-T supplement, which I think is the one you refer to. Turmeric, pomegranate and green tea. I didn't take it during my chemo mainly because I didn't know about it, but I have taken it every day since.

It was recommended by a speaker at the Beating Bowel Cancer Patient Day a few years ago, so figured it can't do any harm! He had various facts and figures that showed it made a difference, but who knows for sure...

lorraine grant

Oooo not heard about that particular potion. I’ll look into Pomo-T. I see my oncology nurse on Monday so have a raft of questions. She will be pleased! I still can’t believe it have this blasted thing! Gggrrr