Anyone just on Cetuximab and 5FU? Our oncologist was talking about the possibility of dropping Irinotecan after aprox 20 treatments but I thought you had to have the full Folfiri to get NHS Cetuximab funding???
My husband is really suffering today. He has his Folfiri/Cetuximab on a Wednesday so today is his 'good' Wednesday when he usually starts to perk up but not this time.
He's not as tired as yesterday (he slept most of Sunday/Mon/Tues) but his face is really really red, painful and sore and together with a painful mouth and tender nose he's really been down in the dumps today. There's even been a few tears and that's not like him at all.
He's just had cycle 18 Folfiri/Cetuximab. Should the skin reaction get better at all?
Even Pliazon isnt helping much now and just stings. They are struggling with dressings on his PICC line as well. They have only got to touch him with Chloraprep and it reacts and stings so it's just saline now. They cut the IV3000 down to cover the smallest area they can get away with to allow Sobaderm to be used to calm down the rest.
He really is struggling this time. Hopefully tomorrow will be better - although as he keeps saying "and it all starts again next Wednesday" - it's not easy is it