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Beating Bowel Cancer Community

Bowel cancer treatment and side effects

LankyYankee

Howdy from Lanky Yankee

Howdy all just to say a huge thank you for all your support! This forum has been my lifeline since I was diagnosed 15 months ago.

Since all the media interest a couple of weeks ago I have now had my first cycle of chemo (poxy oxy plus Cape) with Avastin. I'm due my second cycle tomorrow. I saw my Oncologist on Friday who said my bone marrow was holding up well and my liver and kidneys were doing ok. The only marker that refuses to go down is my Alk Phos which for me is a basic way to measure the activity of all my bone mets alongside how much pain im in. I don't have CEA but my alk phos has always been a sensitive measure of how active my disease is. It's been raised now since Christmas and every time I think it's going down it shoots back up! I'm finding it frustrating. Good thing is tho my pain is well controlled by the cocktail of oxycodon my hospice team have me on. I even managed to lay a new floor in my loo on Friday!

My onc says it's too early to tell if the avastin is having any benefits. I for one though feel pretty good and the huge tumour in my abdomen I now can't feel at all! So I would say it's helping! My oncologist is like a father to me and he doesn't like to see me get my hopes up. Since his meeting with me a few weeks ago where he told me to get my affairs in order quickly I have sat with the solicitor and written my will and power of attorney. I'm organising my funeral and putting the money aside for my family so they don't have to worry about any of it.

I have lots of memory box bits I have yet to write for my children and I need to crack on with it but I tend to spend as many hours a day (usually about 6 to 8) being as active as possible with walking the dogs, chores, cooking, shopping etc then I crash in a heap until the next day. I know this goes against pacing yourself and all those wonderful teachings about metering out of your energy supplies but it's my nature. Do any of y'all struggle to balance your energy levels with your activities? How do you manage it?

So this morning I'm off to recruit a new bowelie! My good friends father has just been diagnosed with stage 4 bowel cancer. He had surgery to his original bowel cancer over 18 months ago with curative intent but now it's come back with a vengeance. Im going over to meet him this morning and hopefully convince him that you can live a meaningful life with stage 4 disease. And to chat with him and his family about what happens now in the NHS system and to put him in touch with his Bowel Cancer nurse specialist. Then I'm going to make dinner for my brood and I have my father in law and his wife on a Sunday. I'm thinking roast beef is in order. Plus it's on sale post Easter! What Sunday plans have y'all got? Yes I promise tonight I'll rest in prep for treatment day tomorrow! I've also got a very important meeting this week with occupational health to determine if I can return to work. Keep your fingers crossed for me please! My huge Yankee love to you all! I'm going to trawl the forum for a bit and see if I can catch up on how tall are doing? If you get a chance to reply to this post please update me on how you are XXX all my love xxxx lanky Yankee :x::x::x:

charleyb

You are inspirational, i`m praying that chemo keeps everything stable!! Keep going, you are doing so well :x::x::x:

HH79

Ps also @LankyYankee just to add, if work keeps you mentally happy then do it sure but is it possible ££ to not work and just chillax?? Lots love :x::x:

GD62

Hello @LankyYankee

Just hoping and praying that Avastin kicks in soon and gives you the time you need.

Good luck wonder woman xxx

mem

Howdy back @LankyYankee. It's lovely to hear from you and I hope you enjoyed your family roast yesterday ☺️. Everything crossed for stability with the Avastin and the above post says it all!!! Lots of love :x::x:

jinnyp

Hi @LankyYankee it’s so lovely to read your update - everything crossed for you that the Avastin does it’s work and keeps you stable for a very long time. You are an inspiration and I am in awe of how you are even considering going back to work - you have a huge heart lovely lady but don’t wear yourself out 😄. Lots of love :x::x::x:

Sparrow

@LankyYankee, lovely to read your update! You are a super 🌟 star!
Sending much love and hugs.. :x::x::x:

Delboy

Thinking of you Laura - 🤗🌟💪🙏🏼💕

margaret ensor

Keeping fingers crossed for you. I have just had second Avastin. Many side effects. Good luck. Love margaret

Michele

Wow @LankyYankee , you are amazing. I am over the moon that you are getting the treatment your deserve and living life the fullest. You are a true inspiration to those of us that have been on here for a while and to anyone just joining. Big hug to you and your family :):x::x::x::x::x::x:

Lizalou

Lots of love and best wishes @LankyYankee

Naomi6861

@LankyYankee OMG you are bloody amazing. I'm in ore of your positive attitude and selfless commitment to others. I think of you often, I tell myself be more Lanky. I know you are just doing what you have to do but my god girl you are doing it with such style and grace, you ARE an inspiration and I send you so much love and strength to you and your family :x::x::x::x::x:

Applejack

@LankyYankee as a relative newbie you are an inspiration. Stealing 'poxy oxy'! 😂Best wishes for your treatment.

bexly33

Thinking of you @LankyYankee. You are one brave lady. You remind me of a younger version of how my mum was when she had breast cancer a good few years ago. Words arent enough. :x::x::x:

steve707

Wishing you well @LankyYankee.Hope that Avastin does its job.:x::x::x:

Sasa

What a woman you are @LankyYankee you should also write a book! 🤣🤣🤣

And then rest ......

Sarah :x:

CD1966

Great to see your Avastin is helping you kick that cancer's ass @LankyYankee ! You go, girl!

Sele2017

@LankyYankee , go girl, ur doing very well and hope the avastin will kick in and stablelise everything! Keep going ur a very strong lady! 😘

LynneW

Great going @LankyYankee ! You are a hero! It is your fantastic spirit that enables you to do all the things you do! I hope the chemo and the medication keeps you feeling well enough to go back to work! :x::x::x:

Clairelou

Been following you on Facebook - you’re truly amazing :x::x::x::x:

Dan-888

You're just awe inspiring @LankyYankee
Dan