Back here with cleanish bowel but have cancerous peritoneum nodules - trying for HIPEC. Help!
Ok so hello everyone in Stage 4. I'll keep it shortish
Bowel tumour split ling March 17, emergency op to remove.
12 Folfox Adjuvant chemo until Oct 17 to help prevent recurrence, didn't work, , pains in abdomen returned, banged tables to bring scans forward from cancerversary
Got CT, then PET CT, then Laparoscopy in December/January - showed 3 small nodules in peritoneum and referred to Basingstoke for likely HIPEC by surgeon - they have links with Durham and she said 'the good news is' while referring to Basingstoke - excellent! No problem there then?
No spread through blood/lymphs - new cancer likely 'fell off and attached' from the original one.
But - Oncologist much less upbeat about surgery, it's 'experimental' currently on Folfiri which 'will not cure' , have scan after 6 and number 4 going in portacath now - yuk no sleep on the Dexa and sick as anyway
Oncologist wants another 6 after that. Bleeuuurgh...
Marvellous advice on Shine Facebook Group for young adults with cancer - I'm 48 so sneaked in at the back, suggested I go to GP for second opinion/referral to Christie/Imperial
Told Oncologist, she said go ahead through pursed lips. I'm not after another opinion as much as want to join 3 queues as I've heard Basingstoke is picky/takes Private first
Any advice welcome for my GP appointment on Friday and anything else you marvellous people can give?