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Beating Bowel Cancer Community

Just Diagnosed

willow1265

Rectal cancer

I had been bleeding for a while and i just kept being told it was piles.. but after it started to happen everytime i went and well as chronic constipation i deciddd to go back to the doctors... i went for a colonoscopy on 3 march and told i had a large polyp and they took a biopsy then sent me down for a CT scan .. i was sent home and told i would receive an urgent appointment to see a consultant.. i was called a week later with an appointment but they then called me to cancel that as i need to have an MRI before seeing the consultant... i have that on sunday.. i have since been told today over the phone by both the nurse and my GP that i have cancer.. adenocarcinoma ... i am so scared .. does anyone know what this is and what the treatment is likely to be .. my head is a mess at the moment

michael

Hiya, Yup, welcome to the club.

You'll probably get various tests, some radiotherapy and some chemo, then a bit of surgery etc. We've all had it so plenty of advice around.

Main thing is to keep cool and positive. Stick to the facts and research.

Good luck

Michael

Freckles50

Hello and a very warm welcome to you @willow1265 but sorry that you find yourself here. We’re a great bunch and you’ve come to the right place if you need more help and information.

It’s very usual to have a CT scan and an MRI once bowel cancer has been confirmed. This will give your team a much clearer picture of the way forward and the treatment that will be offered to you. A multi disciplinary team will meet to discuss the way forward, once all the results are in. This is definitely the worst part of the journey.... waiting and wondering but I promise, once you know your treatment pathway you will feel much calmer. Please try not to google too much, it certainly didn’t do me any favours 🙃. Good luck and please keep us posted. We’re here for you :x::x::x:

Baxter2

Hi @willow1265 and and a very warm welcome to the forum. I’m sure you’ll gain lots of information, friendship and support here.

I’m so sorry to read about your diagnosis and especially being told over the phone! No wonder you’re feeling the way you are.

I would echo what @michael and @Freckles50 have said. This period before the full picture is known, is often described as the worst by newly diagnosed patients. It often feels surreal as we struggle to process the news and try to look to the future imagining all kinds of scenarios. The only advice I’d like to suggest is try to just take things a day at a time just now and keep yourself busy and distracted if you can. There are a number of downloadable booklets which you may find useful as you prepare for your appointment too.

Use the forum as often as you need or want to as I’m sure you’ll find loads of support here.

Sending you all my very best wishes,

K💚💜💙💛❤️

Bear G

Hi @willow1265
Welcome to the forum. I’m sorry to hear of your diagnosis but pleased you’ve found us.

This is probably the toughest part of the whole thing, waiting for everything to happen.

You will have lots of questions and we’ll be here for you all the way through. I’ve pasted a link to an excellent booklet from the charity which explains lots about what you’re going through, there’s lots more info than you need right now but hopefully it’ll be a useful booklet to dip into. (You’ll find my ugly mug on page 31).

One important bit of advice is not to google! Just focus on reputable sites such as this one and Cancer Research UK

Once this testing and diagnosis stage is done you’ll have a treatment plan in place and will be able to get onto your front foot!

Big hugs
Bear
Xx

www.beatingbowelcancer.org/...owel-Cancer-Treatment-Pathway.pdf

willow1265
Quote from @michael:
Hiya, Yup, welcome to the club.

You'll probably get various tests, some radiotherapy and some chemo, then a bit of surgery etc. We've all had it so plenty of advice around.

Main thing is to keep cool and positive. Stick to the facts and research.

Good luck

Michael

Michael, thank you for your message, I will TRY to stay positive, still trying to digest it really.

willow1265
Quote from @Bear G:
Hi @willow1265
Welcome to the forum. I’m sorry to hear of your diagnosis but pleased you’ve found us.

This is probably the toughest part of the whole thing, waiting for everything to happen.

You will have lots of questions and we’ll be here for you all the way through. I’ve pasted a link to an excellent booklet from the charity which explains lots about what you’re going through, there’s lots more info than you need right now but hopefully it’ll be a useful booklet to dip into. (You’ll find my ugly mug on page 31).

One important bit of advice is not to google! Just focus on reputable sites such as this one and Cancer Research UK

Once this testing and diagnosis stage is done you’ll have a treatment plan in place and will be able to get onto your front foot!

Big hugs
Bear
:x::x:

www.beatingbowelcancer.org/...owel-Cancer-Treatment-Pathway.pdf

Hi bear, thank you for your comment, yes I agree this pert seems quite tough, one hour seems like one year.. thank you also for the link, i haven't read it properly yet, but when I have more time I will. Im afraid I did google .. but wont be making that mistake again.. its all very new at the moment
Willow :x:

willow1265
Quote from @Baxter2:
Hi @willow1265 and and a very warm welcome to the forum. I’m sure you’ll gain lots of information, friendship and support here.

I’m so sorry to read about your diagnosis and especially being told over the phone! No wonder you’re feeling the way you are.

I would echo what @michael and @Freckles50 have said. This period before the full picture is known, is often described as the worst by newly diagnosed patients. It often feels surreal as we struggle to process the news and try to look to the future imagining all kinds of scenarios. The only advice I’d like to suggest is try to just take things a day at a time just now and keep yourself busy and distracted if you can. There are a number of downloadable booklets which you may find useful as you prepare for your appointment too.

Use the forum as often as you need or want to as I’m sure you’ll find loads of support here.

Sending you all my very best wishes,

K💚💜💙💛❤️

HI, thank you for your comment, I am finding this site to be quite supportive and ive only been here a day or so... yes I did find out I had cancer via a telephone call but that was because i practically forced it out of them... they wanted to me wait until i had an appointment with the consultant before telling me, but i was tearing my hair out not knowing. I still dont have the full picture as have an MRI on sunday...

Willow :x:

willow1265
Quote from @Freckles50:
Hello and a very warm welcome to you @willow1265 but sorry that you find yourself here. We’re a great bunch and you’ve come to the right place if you need more help and information.

It’s very usual to have a CT scan and an MRI once bowel cancer has been confirmed. This will give your team a much clearer picture of the way forward and the treatment that will be offered to you. A multi disciplinary team will meet to discuss the way forward, once all the results are in. This is definitely the worst part of the journey.... waiting and wondering but I promise, once you know your treatment pathway you will feel much calmer. Please try not to google too much, it certainly didn’t do me any favours 🙃. Good luck and please keep us posted. We’re here for you

Hi and thank you for your comment, I have been told that once I have my MRI they will have a multi Disciplinary team meeting, and then I will be able to see the consultant, I will keep you posted.

Willow :x:

kitti

Hi @willow1265 I have rectal cancer, i have just completed pre op chemoradio. I remember all too well how horrendous the initial waiting period was, I googled and scared myself witless, tbh I couldnt eat, sleep or even string a sentence together properly. I know it doesnt seem like it now but i promise once you get your plan that all the professionals have decided for you at the mdt things will be become clearer, and you will feel better. Until then contact your colorectal nurse wuth sny concerns you have, thats what he/she is there for and they will support you, also you have all of us here, we all 'get it' as we have all been there. Hugs :x:

jinnyp

Hi @willow1265, just wanted to add my welcome 😄 and say sorry you have found yourself here.
This is a great place for support and information and just somewhere to vent if you need to - we may all have different stories but everyone ‘gets’ it and there will invariably be someone who has been where you are.
As others have said the waiting is the worst bit - hopefully you will have your MRI soon and things will move forward quite quickly and you’ll have a treatment plan to focus on.
Take care, Jane :x::x::x:

sweetcheeks

Hi @willow1265 well it looks like most has already been covered, my husbands was rectal cancer , but we were told at the colonoscopy it was definitely cancer, so the difficult times for us was waiting to see if their was any sign of spread, we are 10 months into this journey, please feel free to read up on any us , definitely if you can have some one with you , make a list of questions as you think of them , no such thing as a silly question, was you have a plan it will get a little easier ( if that’s the right word) you will adjust to a new normal, the very best of luck
Much love
Tracey
:x::x::x:

Lady B

Hi @willow1265, and a warm welcome from me. This forum is fabulous and definitely helped me through my journey. I was diagnosed with rectal cancer over 18 months ago and have now finished my treatment being combined chemo/radiotherapy, APR surgery with permanent stoma and more chemo. It is very frightening to start with but once your treatment plan is in place I'm sure you will feel better. Good luck with your scans and keep us posted. :x::x::x:

Michele

Hi @willow1265 , welcome to the forum. I was diagnosed with rectal cancer in May 2015. I was diagnosed with a poorly differentiated ardenocarcinoma. Like you I was absolutely terrified and as everyone has said this is the worse time, waiting to find out what you have to deal with. I was very lucky that it was caught early at Stage 1 with no spread. I had surgery to chop out the tumor and some of my rectum and did not need a stoma or chemo although I did go into surgery expecting one. I lead my life much the same as before although my digestive system is a little different. When you do go to see your consultant , do your homework and take a long list of questions and someone to take some notes, Some consultants record meetings although mine didn't. Best of luck with everything. This forum is a mine of information and the people lovely :x::x::x:

KatieR

Hello @willow1265 ...Welcome to the club
We've all been through the OMG panic cant cope clueless stage ...us very recently
We forced the news out of our Specialist nurse last week because we could not bear to wait another week to see Our Specialist Surgeon
The result was Rectal Cancer With one Node showing up on the PET scan
We have an appointment tomorrow at 11am for the official results of all the scans biopsy etc And hopefully a plan of action to get rid of Johns ‘beast from the south ‘
I have learned so much reading the posts on here and get great comfort from other peoples experiences
Cath :x::x:

cc92

Hi @willow1265. Welcome to the group. This is full of wonderful kind people who can offer loads of support and advice ❣️ My mum is in a similar situation to yourself. Although she had colon cancer around 3.5 years ago. She was suffering for some months with dirrohea and bleeding, At colonoscopy last week she was told she had a large mass in her rectum which they were pretty sure was cancer, since then she has had an ultra sound scan and a CT scan- she is awaiting a MRI next week. We received a phone call today from her doctor to say that the biopsy’s confirmed that it is cancer, her CT scan looks really clear and that it doesn’t look to have spread anywhere, really positive great news to hear. she will not get an appointment with a surgeon until she has her MRI also. Fingers crossed that it shows no signs of any spreading too. Stay positive I’ll keep you in my prayers and hopefully you get some good news 😊 :x::x:

willow1265

thank you for your comment, im afraid im not coping very well with all this waiting... I have my MRI on Sundau morning, I was told the CT scan was unclear, even though they gave me the dye IV. on the MRI form it just says Rectum.
Also since the colonoscopy ive started to get an achy lower back.. never had any aches or pains before :/ was wondering whether this is normal?
I hope your mum also gets good news :) :x:

willow1265
Quote from @KatieR:
Hello @willow1265 ...Welcome to the club
We've all been through the OMG panic cant cope clueless stage ...us very recently
We forced the news out of our Specialist nurse last week because we could not bear to wait another week to see Our Specialist Surgeon
The result was Rectal Cancer With one Node showing up on the PET scan
We have an appointment tomorrow at 11am for the official results of all the scans biopsy etc And hopefully a plan of action to get rid of Johns ‘beast from the south ‘
I have learned so much reading the posts on here and get great comfort from other peoples experiences
Cath

Hi Katie, thank you for your comment, yes im still at the OMG stage, with all sorts racing through my mind.. i also forced it out of the nurse, i wanted to know what was going on. How did your appointment go today? I am finding this site very supportive and like you find it comforting hearing other peoples experiences.
Willow :x:

willow1265
Quote from @kitti:
Hi @willow1265 I have rectal cancer, i have just completed pre op chemoradio. I remember all too well how horrendous the initial waiting period was, I googled and scared myself witless, tbh I couldnt eat, sleep or even string a sentence together properly. I know it doesnt seem like it now but i promise once you get your plan that all the professionals have decided for you at the mdt things will be become clearer, and you will feel better. Until then contact your colorectal nurse wuth sny concerns you have, thats what he/she is there for and they will support you, also you have all of us here, we all 'get it' as we have all been there. Hugs

Thank you for your message, can I ask, what is chemoradio? ive seem it a few times on here? is it just a shortened way of describing radio therapy and chemotherapy or is it a combined treatment (pardon my ignorance) .. yes im finding it difficult to sleep or concentrate, my work have given me the rest of this week off.. Willow :x:

kitti

Hi, Of course, its pre surgery or pre adjuvement therapy, its radiotherapy and chemo together. I had 5 weeks mon-fri, I was on capecitabine chemo tablets 2x a day mon -fri and attended hospital for radiotherapy 1xday mon-fri. The chemo makes the tumor more sensitive to the radiotherapy and the goal is to reduce the tumor and treat the area to reduce chance of re-occurance in the area. Its also makes the tumor easier to remove and my colorectal nurse said its the very best treatment available. I was given mitazapine for my anxiety, as your gp, i promise they help, I can sleep now and function better, hopefully if I get through this nightmare I can stop taking them but atm it helps. I promise theres nothing to worry about with the chemo radio, i had tummy cramps at times but tbh it was far easier than I expected. Im now in the waiting period between chemo radio and surgery, I find this bit harder than the chemoradio. Keep in touch and if theres anything you want to ask, ask. Even if it sounds trivial, im certainly no expert but im happy to answer how ive found things. Hugs :x::x::x:

cc92

@willow1265 this is the worst time not knowing and waiting if you ever need to talk just drop me a message. Try and keep busy if you can I know it’s really hard. Hopefully you get good news :x::x::x: