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Beating Bowel Cancer Community

Stage 4 bowel cancer

DMR700

Stage 4 with liver mets

I’ve recently been diagnosed with stage 4 Bowel cancer which has spread to lymph nodes and throughout my entire liver. They are telling me that due to the extent of the disease, I will never be eligible for surgery and it’s incurable. The plan is to get me surgery to put in a stoma (purely to avoid risk of Bowel obstruction, not removing primary tumour) then give chemo to try and mitigate symptoms and extend life.

I have a 7 month old baby boy who, along with my husband, is my world, so I’m not about to take this lying down!

I’ve read so many stories about people with similar diagnoses where chemo shrunk tumours sufficiently to make them eligible for surgery. However my oncologist has said this is not going to happen in my case due to the extent of the disease. So maybe the good news stories were from people where it wasn’t all 8 sections of the liver affected?

I know I have a hard road ahead of me. I have no idea how long that road will be and don’t think there is any benefit in knowing. I just want to live every day to the full and fight this horrible disease as hard as i can!

Interested in anyone else’s stories!

DMR700

Thanks @ElaineG @Polly 1 @Baxter2 having a wee glass of champagne to celebrate. Back in the chemo chair tomorrow! :x::x:

Baxter2

Quite right @DMR700! You certainly deserve it! 😉🥂

Lots of love,

K💛💜💙💚❤️

charleyb

Brilliant news! Enjoy that fizz 🥂:x::x:

sweetcheeks

Go girl 🥂🥂 @DMR700 💕💕

Lexi

@DMR700 Great news, so chuffed for you :x::x:

kitti

Fantastic news!!! Sending a huge hug, its so lovely to read of your positive results. :x::x::x:

Catlover

Nice one @DMR700 enjoy the champagne, you certainly deserve it. :x::x::x::x:

Smu2

Wonderful news!!! :x::x::x::x:

DMR700

Thanks everyone for your kind words! I know I personally get a boost from reading goodnews on here so hopefully others are the same :x::x::x:

Freckles50

Great news @DMR700 48% shrinkage is an amazing response, keep up the good work. I’m so very pleased for you :x::x::x:

Wren17

So pleased for you @DMR700 :x::x:

kw1983

Lovely news @DMR700 really am
So pleased for you :x::x::x:

Bear G

Fab results @DMR700 - you’re doing amazingly well - superstar!
:x::x:

DMR700

Thanks everyone. Just wish I had a more definitive plan, still feels so up in the air. I suppose I just need to hope for more shrinkage over these next few cycles. Not sure at what point I should start seeking a 2nd opinion from a liver specialist... I would like to think my onc would refer me if she thought it was feasible but have seen so many of you guys having to pursue this yourselves! I’m also wondering about the possibility of having the stoma reversed. Anyway for now I just have to be happy with these results and carry on taking one day at a time! Love to all :x::x::x:

Polly68

@DMR700 I 100% believe a second opinion is a must and our right. Even when you read people's posts you can see how differently treatments are given and sometimes I feel you need a new pair of eyes to look at the problem that could give a different solution. My onco is great, and very different from my old one who moved to work elsewhere. My new one is very patient focussed and forward thinking, he listens to me and actually likes that I ask questions, unlike my last one who was definitely not a people person. My local hospital weren't interested in seeing me about my lung mets, but I asked for a second opinion, he referred me and I've since had lung surgery. When I asked about second opinions he just said, " I'm glad you've asked, I've got some people in mind to contact for you!!" You have to do what you feel is right for you. :x::x::x::x::x:

GD62

hi @DMR700 marvellous news :)

jinnyp

Fabulous results @DMR700, so pleased for you. Know what you mean about the second opinion dilemma. Why don’t you ask your Onc next time you see them and you might get a feel for whether they are likely to be proactive or whether you have to ask to be referred. Good luck :x::x::x:

Gill

@DMR700 BRILLIANT news! None of my second opinion peeps want to offer me anything different. It's an uphill slog contacting all these specialists yourself. Oncologist isn't iterested but I have a scan and review coming up at the end of the month and I'm gradually 'turning the screw' and getting hi to work a bit harder in getting me from incurable to curable. The only thing I've been told may have some benefit on my liver is SIRT - which of course is now only available privately.......

Lynette

Great news @DMR700. Fingers and everything crossed for your next scan results :x::x::x:

2522LAURA

@DMR700 My Husband has just been given a similar diagnosis to you, only his bowel cancer is in the small intestine (he doesnt have a large one) We too have a young family and I was so glad to find your positive story, it gives me faith when I feel like hope is lost. I hope your treatment continues well and you can get your surgery :x::x: