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Posts in this section can only be replied to by the Beating Bowel Cancer nurses. If you wish other users to respond to your question you will need to post it in another topic on the forum as well.

Suzie1

CEA 4.9

My bowel cancer nurse has just given me results but my regular nurse isnt there so i have to wait until monday to see what they want to do. After my tumour was removed in june 2016 my level was 3.1 . It went up to 4 and now latest test its 4.9. This could just be normal for me but it is rising so im concerned. I will know more on monday but wondered what you thpught and what is the plan generally when this happens?? Thank you your help is appreciated. I was T3 N0 MO

Bear G

Hi Suzie
Charlotte is on holiday for the next week so it may be a while before she can reply.
I’ve just replied to your PM and sent you the fact sheet which includes info on CEA levels
:x::x:

Suzie1

Thank you @Bear G . It sounds like anything over 5 can be a cause for concern and I'm now 4.9 so feeling anxious. ☹😞

Bear G

Hi Suzie
I can see why you’d think that but it’s not necessarily the case.
In the fact sheet it says “So a rise of anything up to 5, 6 or 7 could still be normal”
And also that it’s not a matter of a set level being normal or abnormal what they would be looking for is “an upward trend of, for example, 4 - 10 - 20 at consecutive readings would trigger further investigation”. That trend wouldn’t necessarily mean the cancer is back, just that more tests would needed.
It may be natural that your cea levels fluctuate a bit, it’s increases of a big magnitude they’re looking for.
Hope that helps
:x::x:

Baxter2

Hi @Suzie1

I’ve had experience of a steadily rising CEA but this was associated with abdominal pain, poor appetite and weight loss. It did indicate a recurrence on that occasion.

Now my CEA fluctuates between 3 and just over 5 but it’s not associated with any other worrying symptoms and scans are ok ish. I don’t worry about the fluctuations now since I know this can often happen whereas before, it was steadily increasing only.

I hope this goes a little way to reassure you.

Take care,

K💚💜💙💛❤️

Baxter2

Oops! I’ve just realised this post is for Charlotte 😉

Suzie1

@Baxter2 thank you for taking the time to write to me. I just read your story, a true soldier! Bless you, i wish you the very best. :x::x::x:

Baxter2

You just need to keep strong and focussed @Suzie1.

Lots of love

K❤️💚💜💛💙