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Just Diagnosed

Kemptonpark

Pain

I have just been diagnosed with stage 2 colon cancer. Awaiting treatment options. The cancer is approximately only 6 centimetres in from my anus and the pain is getting worse by the day. I am currently taking paracetamol and ibuprofen every 4 hours but its not helping that much. Any recommendations?

Afraidboy
Quote from @Kemptonpark:
Diagnosed last week and currently awaiting commencement of treatment but a bit in the dark. Had the pain for 3 months! Initially thought to be Prostatitus

Once they got the treatment plan done things will progress really quickly, things will get worse before it gets better but when they do have the treatment plan sorted it will make you feel more stronger - The waiting around is the longest, I waited about two months before things got done but everyone is different with other circumstances, just hang in there and you will notice soon it will be out the way, for now try and talk to your oncologist doctor for the pain and hope that will ease and enjoy Christmas. I will follow you all the way :)

Kemptonpark
Quote from @Lady GT:
Good evening and welcome to our forum @Kemptonpark , which I hope you will find a source of support and good advice.
I'm sorry to hear of your recent diagnosis. You are in that no-man's land of waiting around to find out what's next - such a horrid place to be.
As for the pain, yes, I do have a recommendation. Please get in touch with a doctor.
Have you been assigned a specialist nurse yet? Do you have a number for the oncology unit? If not, then I strongly suggest you make an appointment with your GP and explain the situation.
You shouldn't have to put up with severe pain as well as everything else at the moment. If it's difficult to get an appointment with your GP, don't be afraid to play the cancer card.
It's my understanding that cancer patients are generally seen pretty quickly.

So, get on the phone tomorrow and see what you can sort out.
Please let us know how you get on?

Thanks. All comments noted. I am awaiting confirmation of my specialist nurse and I know now that I am in the system. I have the number for the Oncology Unit and I have been told to make a noise if I do not hear from them tomorrow.

Andykas

Hiya, sounds like exactly the same diagnosis as me, same position for the tumour.
In terms of pain relief you'd be best avoiding anything that causes constipation (ie the painkillers that actually work). By the time I had surgery my bowel was so blocked up by the tumour that it perforated twice, luckily healing itself. My recommendation for pain relief is cannabis, I appreciate that due to the legality some will be against the idea, but I'd have been in tears without it.
My gp wouldn't give me anything stronger than paracetamol as I was already down to a liquid diet by then and further constipation would have probably killed me at that point.
Good luck and make sure you do everything you can to push for treatment/surgery asap (I made sure to repeat every symptom to every person I spoke to as often things can get missed off notes and may not get taken into account.)

Kemptonpark
Quote from @Lady GT:
Good evening and welcome to our forum @Kemptonpark , which I hope you will find a source of support and good advice.
I'm sorry to hear of your recent diagnosis. You are in that no-man's land of waiting around to find out what's next - such a horrid place to be.
As for the pain, yes, I do have a recommendation. Please get in touch with a doctor.
Have you been assigned a specialist nurse yet? Do you have a number for the oncology unit? If not, then I strongly suggest you make an appointment with your GP and explain the situation.
You shouldn't have to put up with severe pain as well as everything else at the moment. If it's difficult to get an appointment with your GP, don't be afraid to play the cancer card.
It's my understanding that cancer patients are generally seen pretty quickly.

So, get on the phone tomorrow and see what you can sort out.
Please let us know how you get on?

I have an appointment with the consultant on Wednesday at Huddersfield Royal Infirmary.

Kemptonpark
Quote from @Lady GT:
Good evening and welcome to our forum @Kemptonpark , which I hope you will find a source of support and good advice.
I'm sorry to hear of your recent diagnosis. You are in that no-man's land of waiting around to find out what's next - such a horrid place to be.
As for the pain, yes, I do have a recommendation. Please get in touch with a doctor.
Have you been assigned a specialist nurse yet? Do you have a number for the oncology unit? If not, then I strongly suggest you make an appointment with your GP and explain the situation.
You shouldn't have to put up with severe pain as well as everything else at the moment. If it's difficult to get an appointment with your GP, don't be afraid to play the cancer card.
It's my understanding that cancer patients are generally seen pretty quickly.

So, get on the phone tomorrow and see what you can sort out.
Please let us know how you get on?

Kareno62

Hi @Kemptonpark and welcome. Hope your appointment on Wednesday goes well. Is this just about your pain or your treatment plan? Either way it's always good to have somebody with you for an extra pair of ears and a pen and paper for any questions you've thought of and to make notes on.
Let's us all know how you get on and I hope the traffic up Salterhebble Hill is kind to you! :x:

Lady GT

Good morning @Kemptonpark .
I'm glad you've got an appointment coming up, this will be your chance to ask any questions you have, including about your pain issues.
There can be a lot of information during these appointments so it's a good idea to actually make a list of things you want to ask, as @Kareno62 says. And then take time to write the answers down. This really helps when you get home and can't quite remember what the doctor said about 'such and such'.
Better still, take somebody with you to do this, we all hear different things.

Good luck and please let us know how you get on tomorrow?
:x:

Kemptonpark
Quote from @Kareno62:
Hi @Kemptonpark and welcome. Hope your appointment on Wednesday goes well. Is this just about your pain or your treatment plan? Either way it's always good to have somebody with you for an extra pair of ears and a pen and paper for any questions you've thought of and to make notes on.
Let's us all know how you get on and I hope the traffic up Salterhebble Hill is kind to you!

Hi-Its actually in Huddersfield with Mr Smith. Taking partner who will listen attentively I hope . I seem to digest what is being said then ponder and miss the following dialogue! Typical bloke! Just read your notes........you have had a tough time of it!

Kemptonpark
Quote from @Lady GT:
Good morning @Kemptonpark .
I'm glad you've got an appointment coming up, this will be your chance to ask any questions you have, including about your pain issues.
There can be a lot of information during these appointments so it's a good idea to actually make a list of things you want to ask, as @Kareno62 says. And then take time to write the answers down. This really helps when you get home and can't quite remember what the doctor said about 'such and such'.
Better still, take somebody with you to do this, we all hear different things.

Good luck and please let us know how you get on tomorrow?

Thanks for the advice. I will let you know how I get on.

Kemptonpark

Well finally got to St James Hospital in Leeds this week. All measured up for the radiotherapy commencing on the 19 th February. Feel I have jumped through lots of hoops just to get to this point when my initial diagnosis was actually made back in December. Confirmed as rectal cancer with 5 and a half weeks of treatment and then the operation in June. As previously stated I am not looking forward to the colostomy bag but just about got my head around it now. I am more worried about other long term effects such as loss of libido etc!

DianeS

Wishing you the very best of luck with your treatment and surgery in June @Kemptonpark :x::x:

Kemptonpark

Thank you

Kemptonpark
Quote from @DianeS:
Wishing you the very best of luck with your treatment and surgery in June @Kemptonpark

:x::x:

Kareno62

Good luck @Kemptonpark. Unfortunately the journey there and back will take a lot longer than the treatment but they were really good at changing my appointments to early morning so I beat any backlog of patients that can build up during the day :x:

Kemptonpark

Interesting-what time seems to work best for you?

Kareno62

@Kemptonpark. I used to get the train then bus and get there for an 8.30 appointment. On the odd occasion that I had an afternoon appointment they could be running an hour behind by then and although they would sometimes move you to another machine it was a pain especially as I had to have a full bladder for my treatment!

Kemptonpark

Noted. I have requested afternoon appointments because of work

Kemptonpark
Quote from @DianeS:
Wishing you the very best of luck with your treatment and surgery in June @Kemptonpark

Thanks

chris61

All the best for your treatment @Kemptonpark .