Helpline
Speak to a member of our Information Support Team
(Call-back service – 24h answer machine)

020 8973 0011

or email nurse@beatingbowelcancer.org
Beating Bowel Cancer Community

Bowel cancer treatment and side effects

Lee1974

Who has had the most chemo sessions?

Not a competition or dick waving contest, but I was just curious as to how far we can go with chemo treatments?

I only stared chemo in February and am about to have cycle #20 next week.

I wondered if there were people who were on cycle 50+ etc.

david watt

Is complicated as each cancer case is different and range of treatments is different. Some people have been on maintenance chemotherapy pills more than 5 years, some older people with slow growing bowel cancer survive 10 years without chemotherapy. Having the full whack 3 or 4 different drugs at the same time really takes its toll on you. I would imagine might be some on this kind of treatment 2 to 4 years but would have to have recovery breaks to allow body to heal.

Bear G

Hi @Lee1974
I stopped counting a while back but I’m way over the 50 cycle mark.
Ongoing chemo is becoming more standard as we’re able to live with cancer by controlling it.
In my opinion for this long term approach it’s really important to get a balance with any side effects
How’re you getting on with your treatment?
Big hugs
Bear
:x::x:

Polly 1

Hi @Lee1974 are you still on Folfiri/Cetuximab?
My husband has just had cycle number 18 and is growing a beard (for the first time in his life) as his skin gets very painful - particularly around days 5 to 7. I just wondered how you got on with shaving - although looking at your pic I now see that you too have a beard 😊 Also @Bear G also has his famous beard 😊
Anyone else dealing with Cetux and a beard/no beard dilemma?

Ernie 111

Hi Lee I am on folfori plus cetuximab fortnightly infusions and I have had 100+ come the end of July I will have been on it 4 years

Liriodendron345

@Ernie 111 - that is absolutely brilliant and makes my 53 treatments pale into insignificance (not really) ........ onwards and upwards 😀; of course my chemo buddy @Baxter2 is snapping at my heels 😂 ........ take very good care all, Kim :x::x::x:

Baxter2

Wow! 100+ @Ernie 111 That's amazing!

It's great to know that the treatment is still working for you.

Yes @Liriodendron345 I'm trying to catch you up having just had number 42! I'm following your lead guys!

K💚💛💜💙❤️

Highkaren

interesting...my oncologist only gives 6 to 8 rounds of chemo then watch and wait for typcally 4 months or so with scans in between .....she doesn't see any value in ongoing chemo........may change her in the future if necessary !

Gill

Fortnightly for just coming up to my 40th dose. FOLFIRI for the first 18 months, then FOLFOX (just on my third dose of that one). Having a week off next week to go on holiday! Yippee! (I've actually forgotten the number of treatments I've had!) :x::x:

Polly 1

Anyone just on Cetuximab and 5FU? Our oncologist was talking about the possibility of dropping Irinotecan after aprox 20 but I thought you had to have the full Folfiri to get NHS Cetuximab funding???