Not sure how I feel about this......
Well, it's good news chaps, and Mark has been signed off for a break following 12 rounds of folfiri and avastin. Hooray 💃💥🎯🏅🎡🎉📚
But during the consultation Mark asked his onc if he could be prescribed LDN for his break, as it had had such amazing results. He was also bolstered by the fac that it was a trial at St George's and the Prof running it was known to our oncologist.
He wasn't keen, and explained his reasoning.... basically, as bowel cancer is so diverse, unless the patient keeps on doing what they've been doing, the job of the onc (as he sees it) is harder as you never quite know what is working and what isn't.
Whilst I totally get that, I also feel very strongly that there is a lot out there that will help. Narrowing your options seems daft, especially with things that are being developed that seem to have good results.
We do feel like we have scored quite a victory though as onc has agreed to read up about it with a view to prescribe it (possibly) next time we see him.
He's a great onc and we trust him so this will be interesting, but if they like to keep patients 'doing the same thing' no wonder they don't advocate improving your diet etc.
That thought bewilders me!