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Afraidboy

Hello very nervous

Sorry if I'm totally in the wrong category but I'm very concerned that I received a call from a colorectal nurse specialist to come in for my results tomorrow - Does this mean I have bowel cancer after they got my results? Any information would be great, thanks.

Afraidboy
Quote from @Lawsey:
Hi Afraidboy, is there a number you can call - e.g. chemotherapy unit, for their view. I am also experiencing same in respect of going to the loo e.g. up approx. 6 times last night and have stomach cramps - sending you strength

Hi, they did give me steroids but it's doing nothing to ease it, they said it will take a few days but I'm not going to bank on it, I wouldn't mind if my system would give me a break but it's just goes on and on. Sorry that you're having similar issues as well :x:

jinnyp

@Afraidboy sorry this isn’t easing for you. I had really bad cramps and spasms at the very beginning and found that Buscopan helped to relieve them. Might be worth a try? It’s awful when you can’t sleep because everything seems 10 times worse 😫 Have you ‘been’ yet or still bunged up? :x::x:

Afraidboy
Quote from @jinnyp:
@Afraidboy sorry this isn’t easing for you. I had really bad cramps and spasms at the very beginning and found that Buscopan helped to relieve them. Might be worth a try? It’s awful when you can’t sleep because everything seems 10 times worse 😫 Have you ‘been’ yet or still bunged up?

Hello, I've been but my body system keeps telling me that I need to go, had just seen the oncologist doctor and said see how I go over the weekend, they said its going to get worse before getting better. I did say I do hope this won't be a long term issue as I wanna go now lol. Thank you for getting back to me as always :x:

jinnyp

Everything in this game seems to get worse before it gets better 😂 we just have to focus on the ‘better’ bit and we’ll get there!! Try the buscopan - is antispasmodic and helped me with that side of it :x::x:

Afraidboy
Quote from @jinnyp:
Everything in this game seems to get worse before it gets better 😂 we just have to focus on the ‘better’ bit and we’ll get there!! Try the buscopan - is antispasmodic and helped me with that side of it

Thank you I get some and let you know how I get on after the weekend, we will get there :)

jinnyp
Quote from @Afraidboy:
Thank you I get some and let you know how I get on after the weekend, we will get there

Gotta try everything I reckon :) Hope they help and you have a good weekend :x:

Afraidboy
Quote from @jinnyp:
Gotta try everything I reckon Hope they help and you have a good weekend

Hello, the steroids are not working :( about 30 hours this weekend I've had this issue, I will talk to them tomorrow but I'm starting to lose faith and energy, they say rest up but how can you lol. How you feeling? :x:

jinnyp
Quote from @Afraidboy:
Hello, the steroids are not working about 30 hours this weekend I've had this issue, I will talk to them tomorrow but I'm starting to lose faith and energy, they say rest up but how can you lol. How you feeling?

Oh no, that’s not good! Did you try the buscopan? Are you still getting stomach cramps/spasms? Definitely talk to them tomorrow- maybe ask about painkillers or something so you can at least sleep?
I am ok thx, had chemo #4 on Friday- get pump disconnected tomorrow. Full on prep for Christmas now so no time for side effects 😂 - don’t know how I had time to go to work before all this!!!
Hang in there - must be something that can give some relief :x::x:

Afraidboy
Quote from @jinnyp:
Oh no, that’s not good! Did you try the buscopan? Are you still getting stomach cramps/spasms? Definitely talk to them tomorrow- maybe ask about painkillers or something so you can at least sleep?
I am ok thx, had chemo #4 on Friday- get pump disconnected tomorrow. Full on prep for Christmas now so no time for side effects 😂 - don’t know how I had time to go to work before all this!!!
Hang in there - must be something that can give some relief

Glad that pump gets disconnected for you tomorrow you have had it tough and especially having it off for Christmas, that's what I'm looking forward to is the 21 December where my treatment ends, then I guess it's the waiting around finding out the results etc... I've tried loads of stuff to ease the flare ups and going to tell them it needing to be sorted tomorrow as its losing my energy lol. I've not been to work for two months now and hoping in Feb will get my normal life back :) :x: :x:

jinnyp
Quote from @Afraidboy:
Glad that pump gets disconnected for you tomorrow you have had it tough and especially having it off for Christmas, that's what I'm looking forward to is the 21 December where my treatment ends, then I guess it's the waiting around finding out the results etc... I've tried loads of stuff to ease the flare ups and going to tell them it needing to be sorted tomorrow as its losing my energy lol. I've not been to work for two months now and hoping in Feb will get my normal life back

I have my next chemo on the 15th and planning to take my trusty pump with me to work Christmas party that night - will have to see how that goes 😄 Then number #6 on the 29th!
Sounds like you could do with something to help with sleep if nothing else. I take nytol after my dex otherwise I don’t sleep - that helps me 😄 Be persistent tomorrow and don’t leave/end the call without being happy! :x::x::x:

Afraidboy

Two more weeks left of treatment and I'm now counting down the days.

jinnyp

@Afraidboy I bet you are!!!! Have things improved at all or are you still soldiering on?? :x::x:

Afraidboy

Things are still the same but I've not eaten much to stop going toilet so it has not flared up as much :) I will go in on Monday and just say I've cut down on food totally. How you feeling :x:

jinnyp

Well at least you are getting some relief 😄 Counting down until the end now and then a break over Christmas- you’ll need that!
I am ok thanks, got chemo again next Friday then not til 5th Jan so pleased about that. Keeping busy getting ready as I have family coming to me so lots to do!
Keep meaning to ask you - how are your wife and kiddies coping with you being ill - must be tough because they are quite young aren’t they? :x::x:

Afraidboy

I not told my kids and all I've said "Daddy just poorly at the moment and will slowly get through it" yeah my kids are young I have four in total and I'm only 37 myself, kids ages are, 11,10,6,4 and growing up quick. When does your treatment finish? We will get through this rollercoaster you'll see :x:

jinnyp

That makes sense, they are only young. So are you, this is a cruel bloody disease!!
My girls are 17 so know pretty much what I know except they think that my odds are far better than they probably are. I have just said that whatever the odds are I intend to be on the good side!! I have chemo #5 on Friday- they are going to scan after #6 to see if enough shrinkage of the liver mets for surgery, if not enough then will have 6 more. I’m not sure that my treatment will ‘finish’, not for a long time anyway, I just think it will change. Is all up in the air really, just have to run with it and see where it takes me 😄
You are right about the rollercoaster though - we will get off the other side!! :x::x:

Afraidboy
Quote from @jinnyp:
That makes sense, they are only young. So are you, this is a cruel bloody disease!!
My girls are 17 so know pretty much what I know except they think that my odds are far better than they probably are. I have just said that whatever the odds are I intend to be on the good side!! I have chemo #5 on Friday- they are going to scan after #6 to see if enough shrinkage of the liver mets for surgery, if not enough then will have 6 more. I’m not sure that my treatment will ‘finish’, not for a long time anyway, I just think it will change. Is all up in the air really, just have to run with it and see where it takes me 😄
You are right about the rollercoaster though - we will get off the other side!!

You have been amazing with me from day one and helped me through a lot, so much thanks to you :) yeah we will focus to be positive and not let this thing eat us from the inside, I've not really thought about the scan and only thought about next Thursday when the treatment ends, then not going to think about anything apart from spending Christmas with the family and try to enjoy a roast dinner and of course opening the lovely presents. I will ask the oncologist doctor today on how they will help with my problems as definitely don't want that over Christmas and the new year. :x:

Afraidboy

So I've just received a call from the hospital and they have said they are not giving me my second lot of chemotherapy as my blood levels are low and they're cancelling this altogether, however, still going to be treated for radiotherapy until next week. Nurse said that some people only get one dose of chemotherapy and should be fine and not needing it, I presume this is normal practice?

Afraidboy

PICC line also comes out on Friday - Can't wait for this one.