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Afraidboy

Hello very nervous

Sorry if I'm totally in the wrong category but I'm very concerned that I received a call from a colorectal nurse specialist to come in for my results tomorrow - Does this mean I have bowel cancer after they got my results? Any information would be great, thanks.

Afraidboy
Quote from @jinnyp:
Hi @Afraidboy, Starting Chemo was a good feeling for me because it feels like I am actually doing something now to treat this b*~*^€d thing called cancer. I am having folfox every 2 weeks which means I spend a few hours in the chemo unit having an infusion over a couple of hours and then I am connected up to a small pump which runs in over the next 48 hours. It was actually ok, everyone I have had contact with has been lovely and made it as easy as possible. I had a PICC line inserted the day before chemo which I was terrified about but it was actually no bother and didn’t hurt at all - it now means that there are no more needles as the chemo all goes through it and it’s used for blood tests too.
I had a couple of days earlier this week where I felt weak as a kitten and quite sick but I got cocky and stopped my antisickness meds early so probably my own fault 😩
My next chemo is on the 20th - weirdly looking forward to it!
What day is your appointment? Not long now
Take care
Jane

Well I've waited ten weeks to get told that I have cancer, got told about a week and half back and they wanted me to have a PET scan which I had on Tuesday last week but still waiting and waiting - I'm hoping that I will hear something this week and to see the consultant that will reveal all and start treatment. I presume that when I see them that things will actually get going? It's a tough ride for all of us and I always thought I wouldn't get cancer but how wrong can I get.

How long do you have to have treatment for? I have been told that I will be on it for about 3 months and don't need surgery, MRI scan was clear so I'm hoping the above one will be as well. :x:

Afraidboy
Quote from @Seashells:
Hi @Afraidboy I was glad to get started on chemo even though it isn't my idea of fun!
My attitude to food has changed and I do eat healthy as much as possible but there will always be times when you just can't and there's no benefit in beating yourself up over it, the odd pleasure in moderation isn't likely to have any real impact. You need to eat and certainly won't get better if you starve!

Yeah I'm thinking the same we have to eat, checking all labels on foods and thinking OK what am I actually looking for here? I've spoken to my nurse specialist only once and it was like for two minutes, didn't tell me anything what is happening... :x:

jinnyp
Quote from @Afraidboy:
Well I've waited ten weeks to get told that I have cancer, got told about a week and half back and they wanted me to have a PET scan which I had on Tuesday last week but still waiting and waiting - I'm hoping that I will hear something this week and to see the consultant that will reveal all and start treatment. I presume that when I see them that things will actually get going? It's a tough ride for all of us and I always thought I wouldn't get cancer but how wrong can I get.

How long do you have to have treatment for? I have been told that I will be on it for about 3 months and don't need surgery, MRI scan was clear so I'm hoping the above one will be as well.

My journey started with dodgy blood tests in March- wasn’t thinking cancer at all but eventually ended up here. I guess the journey varies depending on how clear the symptoms are and mine weren’t clear at all 😄
So far I have been told I'll do 6 courses (12weeks) and review, possibly another 6 after that. Hoping for good shrinkage so I can have surgery to liver and bowel - that’s the only way I have any chance of cure.
Hoping you get clear scan results and you have a treatment plan then start moving forward - This isn’t what I'd choose to be doing but feels like I’m hitting back at least 😄
Take care
Jane :x:

Afraidboy

I can't deal with this much longer - it's really getting me down.

jinnyp

Hang in there @Afraidboy, This was the toughest bit for me, it’s scary as hell and you feel so helpless. It won’t be long now hopefully and you will know what you are dealing with and have a plan. Then it’s time to fight this thing. You CAN do it. Big hugs :x::x::x:

Afraidboy
Quote from @jinnyp:
Hang in there @Afraidboy, This was the toughest bit for me, it’s scary as hell and you feel so helpless. It won’t be long now hopefully and you will know what you are dealing with and have a plan. Then it’s time to fight this thing. You CAN do it. Big hugs

Thank you :x:

chrissie

Sending a hug. I don't know what is causing the narrowing in my colon waiting for results on CT scan and might not know then. The waiting is horrendous and I understand you want answers and to start treating the beast, but we are all hear for you and will support you as much as possible. I'm sure someone with far more knowledge than I have will be along shortly :x::x::x:

Lawsey

Hold on in there. You will get through this there will be wobbles and sleepless nights and the waiting is the worse. But you are not alone. Strength to you :x::x::x::x:

1234annie

That's really good news that you were told you don't need surgury @Afraidboy!! It can't be too big then. Mine completely blocked my bowel so it had to be removed straight away! Keep hope, it's all sounding positive. The PET scan sounds like a precaution. I had two ct scans in the dougnut lower and upper and all was ok.
I always say that no one, with or without cancer knows what tomorrow will bring. You have to live for today and enjoy today!! This is super scary for you and you will have bad days but after all this there will be light in your life again ❤ Annie :x:

Afraidboy

Everyone is fantastic on here, thank you for your lovely comments.

As all say 'let's be strong' :x:

CalmOnTheOutside

@Afraidboy it is scary as anything, and we've all been there I think :( Hope you're doing ok today. As @1234annie says, nobody knows what tomorrow brings, with or without a diagnosis. For me this was a bit of a wakeup call - a chance to think about what I really wanted to be doing, and do more of that, rather than just drifting along in my life. Scary has heck, even so. Be strong! :x::x:

Afraidboy
Quote from @CalmOnTheOutside:
@Afraidboy it is scary as anything, and we've all been there I think Hope you're doing ok today. As @1234annie says, nobody knows what tomorrow brings, with or without a diagnosis. For me this was a bit of a wakeup call - a chance to think about what I really wanted to be doing, and do more of that, rather than just drifting along in my life. Scary has heck, even so. Be strong!

Hello, thank you I'm feeling bit more positive today I think it's because it's the weekend and we all know nothing gets done these days, I'm gonna fight it and decided I'm not going anywhere. Your totally right this is a wake up call and this will teach me more about life and I won't take it for granted.

We will all get there with everyone's support and kindness, I'm so glad this forum is here otherwise I believe we would be alone.

Please keep me updated how you're getting bloop as well as its not just me, it's everyone

Kind regards

Afraidboy

*along

Afraidboy

Just got a call and going to see the oncology Doctor on Friday this week - I'm so nervous and having to wait until the end of the week for details and treatment plan.

jinnyp
Quote from @Afraidboy:
Just got a call and going to see the oncology Doctor on Friday this week - I'm so nervous and having to wait until the end of the week for details and treatment plan.

That's good news @Afraidboy, it probably seems like an age but it will go quickly - my first appointment was on a Friday and it seemed like the longest week!!

Have you got someone going with you? It helps to have another pair of ears because there will be a lot of information and it's hard to take it all in - was good to have someone to refer back to and double check things with.
I took a notebook and wrote everything down and so did my hubby, I also had a list of questions as long as my arm to make sure that I didn't miss anything.

Maybe between now and then make a list of things that you want to know, nothing is a silly question :)

Then try and do some nice things this week - distraction might help the time pass a little quicker.

I am having my second chemo on Friday so will be looking out to see how you get on.

Take care, Jane :x:

Afraidboy

I know the wait seems ages away and hoping it's not further bad news. I will take a note pad and pen and write down as much as they tell me, it's all scary thoughts and not knowing the outcome. My mum will go with me so that be handy :) good luck on your second chemo session, how you finding it? :x:

jinnyp

@Afraidboy, whatever the news you will know what is happening with you and what the treatment plan will be - it's hard to move forward when you are in limbo like this waiting.
Good that Mum is going with you - I was all set to be strong and go on my own but so glad that I didn't.

I pretty much knew what they were going to tell me but somehow hearing them put it into words and then tell me what treatment I could have made it less scary somehow (although I think this rates about the scariest thing I have done to date!)

My chemo is going ok so far, it's definitely do-able. My 81 year old Mum is coming with me, I think I'm more worried whether she will have a comfy chair to sit in than I am about the treatment ...lol!

Take care, Jane :x:

Afraidboy

Aww I will keep you all updated. :x:

jinnyp

Please do :x:

chrissie

Sending you a hug, now you have a date remember to write down questions you want to ask. If possible take someone with you as an extra pair of ears can be invaluable. Good luck for Friday :x::x: